Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere
Keywords:
patient empowerment; care-partner; low-middle-income countries; health policy; World Kidney Day
References
1) Tong A, Manns B, Wang AYM, Hemmelgarn B, Wheeler DC, Gill J, et al.; SONG Implementation Workshop Investigators. Implementing core outcomes in kidney disease: report of the Standardized Outcomes in Nephrology (SONG) implementation workshop. Kidney Int. 2018;94(6):1053-68. doi: 10.1016/j.kint.2018.08.018.
2) Carter SA, Gutman T, Logeman C, Cattran D, Lightstone L, Bagga A, et al.; SONG-GD Investigators. Identifying outcomes important to patients with glomerular disease and their caregivers. Clin J Am Soc Nephrol. 2020;15(5):673-84. doi: 10.2215/CJN.13101019.
3) Hanson CS, Craig JC, Logeman C, Sinha A, Dart A, Eddy AA, et al.; SONG-Kids Consensus Workshops Investigators. Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology-Children and Adolescents (SONG-KIDS) consensus workshops. Kidney Int. 2020;98(3):553-65. doi: 10.1016/j.kint.2020.05.054.
4) Matus González A, Gutman T, Lopez-Vargas P, Anumudu S, Arce CM, Craig JC, et al. Patient and caregiver priorities for outcomes in CKD: A Multinational Nominal Group Technique Study. Am J Kid Dis. May 31, 2020. doi: 10.1053/j.ajkd.2020.03.022.
5) World Health Organization. Towards a common language for functioning, disability and health. The International Classification of Functioning, Disability and Health [Internet]. Geneva: WHO, 2002. (WHO/EIP/GPE/CAS/01.3). Disponible en: (consulta: 20/10/2020).
6) World Health Organization. Health Promotion Glossary [Internet]. Geneva: WHO, 1998. (WHO/HPR/HEP/98.1). Disponible en: (consulta: 20/10/2020).
7) Baumgart A, Manera KE, Johnson DW, Craig JC, Shen JI, Ruiz L, et al. Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregivers. Nephrol Dial Transplant. 2020;35(11):1949-58. doi: 10.1093/ndt/gfaa127.
8) Patient-Centered Outcomes Research Institute. The Value of Engagement [Internet]. PCORI, 2018. Disponible en: (consulta: 01/09/2020).
9) Bonventre JV, Hurst FP, West M, Wu I, Roy-Chaudhury P, Sheldon M. A Technology Roadmap for Innovative Approaches to Kidney Replacement Therapies: A Catalyst for Change. Clin J Am Soc Nephrol. 2019;14(10):1539-47. doi: 10.2215/CJN.02570319.
10) Ibrahim N, Michail M, Callaghan P. The strengths based approach as a service delivery model for severe mental illness: a meta-analysis of clinical trials. BMC Psychiatry. 2014;14:243. doi: 10.1186/s12888-014-0243-6.
11) Parham R, Jacyna N, Hothi D, Marks SD, Holttum S, Camic P. Development of a measure of caregiver burden in paediatric chronic kidney disease: The Paediatric Renal Caregiver Burden Scale. J Health Psychol. 2016;21(2):193-205. doi: 10.1177/1359105314524971.
12) Subramanian L, Kirk R, Cuttitta T, Bryant N, Fox K, McCall M, et al. Remote Management for Peritoneal Dialysis: A Qualitative Study of Patient, Care Partner, and Clinician Perceptions and Priorities in the United States and the United Kingdom. Kidney Med. 2019;1(6):354-65. doi: 10.1016/j.xkme.2019.07.014.
13) Angwenyi V, Aantjes C, Kajumi M, De Man J, Criel B, Bunders-Aelen J. Patients experiences of self-management and strategies for dealing with chronic conditions in rural Malawi. PLoS One. 2018;13(7):e0199977. doi: 10.1371/journal.pone.0199977.
14) Ulasi II, Ijoma CK. The enormity of chronic kidney disease in Nigeria: the situation in a teaching hospital in South-East Nigeria. J Trop Med. 2010;2010:501957. doi: 10.1155/2010/501957.
15) Spinowitz B, Pecoits-Filho R, Winkelmayer WC, Pergola PE, Rochette S, Thompson-Leduc P, et al. Economic and quality of life burden of anemia on patients with CKD on dialysis: a systematic review. J Med Econ. 2019;22(6):593-604. doi: 10.1080/13696998.2019.
16) Sukul N, Speyer E, Tu C, Bieber BA, Li Y, Lopes AA, et al.; CKDopps and CKD-REIN investigators. Pruritus and Patient Reported Outcomes in Non-Dialysis CKD. Clin J Am Soc Nephrol. 2019;14(5):673-681. doi: 10.2215/CJN.09600818.
17) Gregg LP, Hedayati SS. Pharmacologic and psychological interventions for depression treatment in patients with kidney disease. Curr Opin Nephrol Hypertens. 2020;29(5):457-64. doi: 10.1097/MNH.0000000000000629.
18) Li PK, Garcia-Garcia G, Lui SF, Andreoli S, Fung WW, Hradsky A, et al.; World Kidney Day Steering Committee. Kidney health for everyone everywhere-from prevention to detection and equitable access to care. Kidney Int. 2020;97(2):226-32. doi: 10.1016/j.kint.2019.12.002.
19) Kalantar-Zadeh K, Li PK. Strategies to prevent kidney disease and its progression. Nat Rev Nephrol. 2020;16(3):129-30. doi: 10.1038/s41581-020-0253-1.
20) Kalantar-Zadeh K, Wightman A, Liao S. Ensuring choice for people with kidney failure - dialysis, supportive care, and hope. N Engl J Med. 2020;383(2):99. doi: 10.1056/NEJMp2001794.
2) Carter SA, Gutman T, Logeman C, Cattran D, Lightstone L, Bagga A, et al.; SONG-GD Investigators. Identifying outcomes important to patients with glomerular disease and their caregivers. Clin J Am Soc Nephrol. 2020;15(5):673-84. doi: 10.2215/CJN.13101019.
3) Hanson CS, Craig JC, Logeman C, Sinha A, Dart A, Eddy AA, et al.; SONG-Kids Consensus Workshops Investigators. Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology-Children and Adolescents (SONG-KIDS) consensus workshops. Kidney Int. 2020;98(3):553-65. doi: 10.1016/j.kint.2020.05.054.
4) Matus González A, Gutman T, Lopez-Vargas P, Anumudu S, Arce CM, Craig JC, et al. Patient and caregiver priorities for outcomes in CKD: A Multinational Nominal Group Technique Study. Am J Kid Dis. May 31, 2020. doi: 10.1053/j.ajkd.2020.03.022.
5) World Health Organization. Towards a common language for functioning, disability and health. The International Classification of Functioning, Disability and Health [Internet]. Geneva: WHO, 2002. (WHO/EIP/GPE/CAS/01.3). Disponible en:
6) World Health Organization. Health Promotion Glossary [Internet]. Geneva: WHO, 1998. (WHO/HPR/HEP/98.1). Disponible en:
7) Baumgart A, Manera KE, Johnson DW, Craig JC, Shen JI, Ruiz L, et al. Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregivers. Nephrol Dial Transplant. 2020;35(11):1949-58. doi: 10.1093/ndt/gfaa127.
8) Patient-Centered Outcomes Research Institute. The Value of Engagement [Internet]. PCORI, 2018. Disponible en:
9) Bonventre JV, Hurst FP, West M, Wu I, Roy-Chaudhury P, Sheldon M. A Technology Roadmap for Innovative Approaches to Kidney Replacement Therapies: A Catalyst for Change. Clin J Am Soc Nephrol. 2019;14(10):1539-47. doi: 10.2215/CJN.02570319.
10) Ibrahim N, Michail M, Callaghan P. The strengths based approach as a service delivery model for severe mental illness: a meta-analysis of clinical trials. BMC Psychiatry. 2014;14:243. doi: 10.1186/s12888-014-0243-6.
11) Parham R, Jacyna N, Hothi D, Marks SD, Holttum S, Camic P. Development of a measure of caregiver burden in paediatric chronic kidney disease: The Paediatric Renal Caregiver Burden Scale. J Health Psychol. 2016;21(2):193-205. doi: 10.1177/1359105314524971.
12) Subramanian L, Kirk R, Cuttitta T, Bryant N, Fox K, McCall M, et al. Remote Management for Peritoneal Dialysis: A Qualitative Study of Patient, Care Partner, and Clinician Perceptions and Priorities in the United States and the United Kingdom. Kidney Med. 2019;1(6):354-65. doi: 10.1016/j.xkme.2019.07.014.
13) Angwenyi V, Aantjes C, Kajumi M, De Man J, Criel B, Bunders-Aelen J. Patients experiences of self-management and strategies for dealing with chronic conditions in rural Malawi. PLoS One. 2018;13(7):e0199977. doi: 10.1371/journal.pone.0199977.
14) Ulasi II, Ijoma CK. The enormity of chronic kidney disease in Nigeria: the situation in a teaching hospital in South-East Nigeria. J Trop Med. 2010;2010:501957. doi: 10.1155/2010/501957.
15) Spinowitz B, Pecoits-Filho R, Winkelmayer WC, Pergola PE, Rochette S, Thompson-Leduc P, et al. Economic and quality of life burden of anemia on patients with CKD on dialysis: a systematic review. J Med Econ. 2019;22(6):593-604. doi: 10.1080/13696998.2019.
16) Sukul N, Speyer E, Tu C, Bieber BA, Li Y, Lopes AA, et al.; CKDopps and CKD-REIN investigators. Pruritus and Patient Reported Outcomes in Non-Dialysis CKD. Clin J Am Soc Nephrol. 2019;14(5):673-681. doi: 10.2215/CJN.09600818.
17) Gregg LP, Hedayati SS. Pharmacologic and psychological interventions for depression treatment in patients with kidney disease. Curr Opin Nephrol Hypertens. 2020;29(5):457-64. doi: 10.1097/MNH.0000000000000629.
18) Li PK, Garcia-Garcia G, Lui SF, Andreoli S, Fung WW, Hradsky A, et al.; World Kidney Day Steering Committee. Kidney health for everyone everywhere-from prevention to detection and equitable access to care. Kidney Int. 2020;97(2):226-32. doi: 10.1016/j.kint.2019.12.002.
19) Kalantar-Zadeh K, Li PK. Strategies to prevent kidney disease and its progression. Nat Rev Nephrol. 2020;16(3):129-30. doi: 10.1038/s41581-020-0253-1.
20) Kalantar-Zadeh K, Wightman A, Liao S. Ensuring choice for people with kidney failure - dialysis, supportive care, and hope. N Engl J Med. 2020;383(2):99. doi: 10.1056/NEJMp2001794.
Published
2021-03-25
How to Cite
1.
Kalantar-Zadeh K, Kam-Tao Li P, Tantisattamo E, Kumaraswami L, Liakopoulos V, Lui S-F, Ulasi I, Andreoli S, Balducci A, Dupuis S, Harris T, Hradsky A, Knight R, Kuma S, Maggie N, Poidevin A, Saadi G, Tong A. Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere. Rev Nefrol Dial Traspl. [Internet]. 2021Mar.25 [cited 2024Jul.16];41(1):2-. Available from: http://revistarenal.org.ar/index.php/rndt/article/view/609
Section
Editorial
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