Cómo vivir bien con una enfermedad renal a través del empoderamiento del paciente y de su cuidador: salud renal para todos en todas partes

Palabras clave

empoderamiento del paciente; cuidadores; países de ingresos medios bajos; política sanitaria; Día Mundial del Riñón


1) Tong A, Manns B, Wang AYM, Hemmelgarn B, Wheeler DC, Gill J, et al.; SONG Implementation Workshop Investigators. Implementing core outcomes in kidney disease: report of the Standardized Outcomes in Nephrology (SONG) implementation workshop. Kidney Int. 2018;94(6):1053-68. doi: 10.1016/j.kint.2018.08.018.

2) Carter SA, Gutman T, Logeman C, Cattran D, Lightstone L, Bagga A, et al.; SONG-GD Investigators. Identifying outcomes important to patients with glomerular disease and their caregivers. Clin J Am Soc Nephrol. 2020;15(5):673-84. doi: 10.2215/CJN.13101019.

3) Hanson CS, Craig JC, Logeman C, Sinha A, Dart A, Eddy AA, et al.; SONG-Kids Consensus Workshops Investigators. Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology-Children and Adolescents (SONG-KIDS) consensus workshops. Kidney Int. 2020;98(3):553-65. doi: 10.1016/j.kint.2020.05.054.

4) Matus González A, Gutman T, Lopez-Vargas P, Anumudu S, Arce CM, Craig JC, et al. Patient and caregiver priorities for outcomes in CKD: A Multinational Nominal Group Technique Study. Am J Kid Dis. May 31, 2020. doi: 10.1053/j.ajkd.2020.03.022.

5) World Health Organization. Towards a common language for functioning, disability and health. The International Classification of Functioning, Disability and Health [Internet]. Geneva: WHO, 2002. (WHO/EIP/GPE/CAS/01.3). Disponible en: (consulta: 20/10/2020).

6) World Health Organization. Health Promotion Glossary [Internet]. Geneva: WHO, 1998. (WHO/HPR/HEP/98.1). Disponible en: (consulta: 20/10/2020).

7) Baumgart A, Manera KE, Johnson DW, Craig JC, Shen JI, Ruiz L, et al. Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregivers. Nephrol Dial Transplant. 2020;35(11):1949-58. doi: 10.1093/ndt/gfaa127.

8) Patient-Centered Outcomes Research Institute. The Value of Engagement [Internet]. PCORI, 2018. Disponible en: (consulta: 01/09/2020).

9) Bonventre JV, Hurst FP, West M, Wu I, Roy-Chaudhury P, Sheldon M. A Technology Roadmap for Innovative Approaches to Kidney Replacement Therapies: A Catalyst for Change. Clin J Am Soc Nephrol. 2019;14(10):1539-47. doi: 10.2215/CJN.02570319.

10) Ibrahim N, Michail M, Callaghan P. The strengths based approach as a service delivery model for severe mental illness: a meta-analysis of clinical trials. BMC Psychiatry. 2014;14:243. doi: 10.1186/s12888-014-0243-6.

11) Parham R, Jacyna N, Hothi D, Marks SD, Holttum S, Camic P. Development of a measure of caregiver burden in paediatric chronic kidney disease: The Paediatric Renal Caregiver Burden Scale. J Health Psychol. 2016;21(2):193-205. doi: 10.1177/1359105314524971.

12) Subramanian L, Kirk R, Cuttitta T, Bryant N, Fox K, McCall M, et al. Remote Management for Peritoneal Dialysis: A Qualitative Study of Patient, Care Partner, and Clinician Perceptions and Priorities in the United States and the United Kingdom. Kidney Med. 2019;1(6):354-65. doi: 10.1016/j.xkme.2019.07.014.

13) Angwenyi V, Aantjes C, Kajumi M, De Man J, Criel B, Bunders-Aelen J. Patients experiences of self-management and strategies for dealing with chronic conditions in rural Malawi. PLoS One. 2018;13(7):e0199977. doi: 10.1371/journal.pone.0199977.

14) Ulasi II, Ijoma CK. The enormity of chronic kidney disease in Nigeria: the situation in a teaching hospital in South-East Nigeria. J Trop Med. 2010;2010:501957. doi: 10.1155/2010/501957.

15) Spinowitz B, Pecoits-Filho R, Winkelmayer WC, Pergola PE, Rochette S, Thompson-Leduc P, et al. Economic and quality of life burden of anemia on patients with CKD on dialysis: a systematic review. J Med Econ. 2019;22(6):593-604. doi: 10.1080/13696998.2019.

16) Sukul N, Speyer E, Tu C, Bieber BA, Li Y, Lopes AA, et al.; CKDopps and CKD-REIN investigators. Pruritus and Patient Reported Outcomes in Non-Dialysis CKD. Clin J Am Soc Nephrol. 2019;14(5):673-681. doi: 10.2215/CJN.09600818.

17) Gregg LP, Hedayati SS. Pharmacologic and psychological interventions for depression treatment in patients with kidney disease. Curr Opin Nephrol Hypertens. 2020;29(5):457-64. doi: 10.1097/MNH.0000000000000629.

18) Li PK, Garcia-Garcia G, Lui SF, Andreoli S, Fung WW, Hradsky A, et al.; World Kidney Day Steering Committee. Kidney health for everyone everywhere-from prevention to detection and equitable access to care. Kidney Int. 2020;97(2):226-32. doi: 10.1016/j.kint.2019.12.002.

19) Kalantar-Zadeh K, Li PK. Strategies to prevent kidney disease and its progression. Nat Rev Nephrol. 2020;16(3):129-30. doi: 10.1038/s41581-020-0253-1.

20) Kalantar-Zadeh K, Wightman A, Liao S. Ensuring choice for people with kidney failure - dialysis, supportive care, and hope. N Engl J Med. 2020;383(2):99. doi: 10.1056/NEJMp2001794.
Creative Commons License
Esta obra está bajo licencia internacional Creative Commons Reconocimiento-NoComercial-CompartirIgual 4.0.